newsroom.wiley.com
Press Release Details
VIEW ALL NEWS
New Study Identifies Quality Measures for End-of-Life Care for Children With Cancer
05/05/2021
There is currently no consensus on what quality end-of-life care for children with cancer looks like, or how to measure and deliver it; however, investigators recently assembled an expert panel to help fill this void. In a study published early online in CANCER, a peer-reviewed journal of the American Cancer Society, the panel endorsed 16 measures that cover different aspects of care that are important for children with cancer and their families.
“Measuring the quality of the care delivered is an essential part of ensuring high quality end-of-life care for all patients. Although there are numerous quality measures for end-of-life care for adults with cancer, there are zero for children with cancer,” said lead author Emily Johnston, MD, MS, of the University of Alabama at Birmingham.
To address this, Dr. Johnston and her colleagues selected a panel of individuals with expertise in pediatric and adult oncology, pediatric palliative care, social work, nursing, and hospice care. The investigators provided the panel with information on 20 proposed measures derived from adult measures and from interviews with bereaved parents whose child died of cancer.
After the panel members scored each measure and participated in discussions, they endorsed a set of 16 measures that covered four distinct aspects of care: avoiding medically intensive care at end-of-life; helping families achieve the location of death preferred for their child; advancing hospital policies and procedures for end-of-life care; and expanding supportive services for the child, as well as for parents and siblings.
“This is the first study to identify quality measures for end-of-life care for children with cancer. Some of the measures are similar to those used in adults, like avoiding intubation at the end-of-life, but others are novel, such as assessing sibling needs at end-of-life,” said Dr. Johnston. “Therefore, it is essential that we have quality measures specific for children with cancer.”
The team noted that the measures need to be refined and validated with bereaved families before they can be applied as a tool to help standardize care. Once validated, these measures may be useful for determining the quality of end-of-life care that different programs provide and for identifying disparities. “For example, they will allow us to determine if Hispanic and Black children with cancer are receiving as high quality end-of-life care as non-Hispanic white children,” Dr. Johnston explained. “Once we have identified groups that are at risk of receiving poor quality end-of-life care, we can develop targeted interventions to improve it.”
An accompanying editorial notes that the study’s results may have implications for improving end-of-life care for adults as well. “This is an exciting time when more research will emerge to move end-of-life care forward in a way that can serve all patients and families better,” the authors of the editorial wrote.
Additional Information
NOTE: The information contained in this release is protected by copyright. Please include journal attribution in all coverage. A free abstract of this article will be available via the Cancer News Room upon online publication. For more information or to obtain a PDF of any study, please contact:
Dawn Peters +1 781-388-8408 (US)
newsroom@wiley.com
Follow us on Twitter @WileyNews
Full Citations:
“Quality measures for end-of-life care for children with cancer: A modified Delphi approach.” Emily E. Johnston, Isaac Martinez, Joanne Wolfe, and Steven M. Asch. CANCER; Published Online: March 30, 2021 (DOI: 10.1002/cncr.33546).
URL Upon Publication: http://doi.wiley.com/10.1002/cncr.33546
Editorial: “Adults are just big children: What we can learn about quality end-of-life care from pediatrics.” Jori F. Bogetz and Abby R. Rosenberg. CANCER; Published Online: March 30, 2021 (DOI: 10.1002/cncr.33548).
URL Upon Publication: http://doi.wiley.com/10.1002/cncr.33548
Author Contact: Bob Shepard, UAB Public Relations Manager, at bshep@uab.edu or +1 205-410-0915.
About the Journal
CANCER is a peer-reviewed publication of the American Cancer Society integrating scientific information from worldwide sources for all oncologic specialties. The objective of CANCER is to provide an interdisciplinary forum for the exchange of information among oncologic disciplines concerned with the etiology, course, and treatment of human cancer. CANCER is published on behalf of the American Cancer Society by Wiley and can be accessed online.
Follow us on Twitter @JournalCancer
About Wiley
Wiley drives the world forward with research and education. Through publishing, platforms and services, we help students, researchers, universities, and corporations to achieve their goals in an ever-changing world. For more than 200 years, we have delivered consistent performance to all of our stakeholders. The Company's website can be accessed at www.wiley.com.
Multimedia Files:
Cancer
Download:
DOWNLOAD ORIGINAL 10 KB
111 X 150
DOWNLOAD THUMBNAIL 9 KB
111 X 150
DOWNLOAD LOWRES 9 KB
111 X 150
DOWNLOAD SQUARE 65 KB
250 X 250
VIEW ALL NEWS
FOLLOW US
MEDIA CONTACT
Please send us an email at newsroom@wiley.com for any questions or media inquiries.
ABOUT
About us
Careers
Corporate Citizenship
Corporate Governance
Investors
Leadership Team
Newsroom
The Wiley Foundation
SUPPORT
Help
Contact us
Site Map
Privacy Policy
Terms of Use
Copyright © 2000-2021 by John Wiley & Sons, Inc., or related companies. All rights reserved.
Powered By Q4 Inc. 5.56.0.1
NEWSROOM HOMEPRESS RELEASESFINANCIAL REPORTSLEADERSHIP TEAMRESOURCESContact UsCOVID-19 ResourcesRSS FeedsScience TalksSign Up For News Alerts